Thursday, August 9, 2012

Send the Sjogren's Syndrome Foundation Your Face -- And Your Story

Check out the Sjogren's Syndrome Foundation's latest project:  Faces of Sjogren's. This from their blog, Conquering Sjogren's:
With the launch of the SSF 5-Year Breakthrough Goal, 50in5: “To shorten the time to diagnose Sjogrens’s by 50% in 5 years” we are also hoping to change how Sjogren’s is understood. 
The Foundation knows how isolating being diagnosed with an invisible illness can be, but you are not alone. There are an estimated 4 million Americans suffering from Sjögren’s, both men and women of different ages and ethnicities. 
This is why we are launching a new awareness campaign for our website,, called “Faces of Sjögren’s” where we want to share your stories! 
As a way to help recently diagnosed patients, in addition to helping others find a diagnosis quicker, these stories will help others relate because no patient is alone.  Whether you are a patient, doctor, loved one or family member, we want to know your own personal experience with Sjögren's.  With your help, we hope this project will help us reach our 5-Year Breakthrough Goal! 
When submitting your story:
  • Stay within 250 words 
  • Include aspects of how Sjögren's has affected your life and ways you have been able to effectively cope with your symptoms 
  • Include a personal few words of inspiration. At the beginning of your story, please complete the following phrase, “When I was diagnosed with Sjögren's, my first thought was.. 
  • And don’t forget to include a picture of you!
Email your story to with the subject “Faces of Sjögren’s.” Together we will conquer Sjögren’s!

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