Saturday, July 30, 2016

Sjogren's Syndrome Foundation: Check out their newest awareness video

Hi guys! Yes, I am actually still around in spite of my continued lackadaisical blogging attitude. The family and I returned from a three week stay in Wisconsin several days ago, and I am still recovering. I'm busy replenishing my energy stores, slowly unpacking my suitcases, and am still scratching a zillion mosquito bites. It's good to be home. 

Mom update: She and her caregiver Isabel have become comfortable friends. Mom looks to her to finish a sentence, or explain unspoken thoughts to a visitor since they seem to have a language all their own. It's great. Although Mom has not made much progress in stroke recovery, still she seems infinitely more comfortable and content in her own home and her own bed, which makes me feel very very good about the results of our efforts to move her from a nursing home back to her own house. 

But John's mom isn't faring well these days with the devastating effects of Alzheimer's disease becoming more apparent. It was so hard for John to realize for the first time that his mother didn't recognize him. Her memory has it's highs and lows but the stress of visitors along with hot and humid weather in an un-airconditioned home taxed her limited memory and coping skills to the max. We will be making frequent return visits to both of our moms in the near future. 

In other news, the Sjogren's Syndrome Foundation along with its Chief Executive Director Steven Taylor have produced a great video to promote awareness about Sjogren's syndrome. Take a look, and share with others:

1 comment:

Anonymous said...

Welcome back! Happy to hear that your Mom has is at home and in a good situation. Sorry to hear about John's mom. These are tough times for both of you.

So, take your time to get rested and be sure to pace yourself.

We love to hear from you, but put your health first.