Tuesday, March 17, 2015

Huffpost Lifestyle: #Hospitalglam Matters Because My Appearance Doesn't Reflect the Severity of My Illness

Yesterday, Huffpost Lifestyle published an excellent piece written by Jade Hamnett highlighting invisible illness and the #Hospitalglam tumblr project initiated by Karolyn Gehrig. Check it out:
Karolyn Gehrig, like myself, has Ehlers-Danlos Syndrome. It's a genetic condition that's caused by a fault in the connective tissue - the stuff that basically holds us together. While the condition has various types, there are some symptoms that are common across the Ehlers-Danlos spectrum. It's usually incredibly painful, exhausting, and impacts every part of the body from the joints to the organs. And there's no cure. Many of us spend endless time in and out of hospital.  
Last April Karolyn tweeted some selfies. Her and everyone else, right? But her photos are very different to the usual backgrounds of partying and having fun with friends. She's framed by treatment rooms, face masks and the wires attached to her body. continue reading here.

1 comment:

Anonymous said...

I love this project, and I have soon a visit in hospital, I'm nearly happy to have one so I can take a picture, can you believe that? I hate hospital, and now I'm not as afraid to go as before.