Monday, November 17, 2014


Guys. I know that my posts over the past few weeks's content contain little to no information about Sjogren's syndrome. Every day I look at my laptop and think, "TODAY I'm going to post about this study; or that study; or new diagnostics."

But it just doesn't happen because my brain is just not engaged in much of anything except my autoimmune body and it's reaction to surgery.

Preoccupied. Self-absorbed. Narrow scope of vision. Yep, that's me.

Yesterday, I thought it was high time for me to get to Sunday Mass; so I dressed up a teensy bit, meaning that I put something other than yoga pants and a sweatshirt, and off we went. I knew before I even left the car that this would be a low energy/high pain day but thought I'd just push through it. Mass only takes one hour. How bad could it be?

I lasted just until the end of the Gospel reading before I realized that I just had to go home and get flat. I snagged John and my son and we headed home after which I planted myself in bed with an ice pack and slept the rest of the day. This made me cranky.

I dislike inconsistency. My days are never the same; even before surgery entered the picture I've been frustrated by the weirdo patterns that my energy reserves create. But now, my abilities vary even more wildly from feeling absolutely fine to absolutely flat. And then there's the back pain to factor in.

Wah. Wah wah wah.

I've written several drafts of posts in which I attempt to return to writing about autoimmune disease and I promise that sometime soon I'll actually finish one and punch the PUBLISH button.



Marion said...

Relax, this is exactly what happens after major surgery. And in my experience if they say you'll be fine in a month, count on it being six months at least. It takes as long as it takes.

Nicole said...

Julia, you are real. That's why we read your blog!

Anonymous said...

Julia, even this information is informative regarding how we as Sjogren's patients might react when faced with surgery. So far I have been lucky and have not had surgery after my diagnosis. Please just take care of yourself, and be nice to yourself. There is such a wealth of information on your sight that we can look up all kinds of things. I plan on looking up Prednisone today to see what you say about it. I got a 5 day pack and feel like a new woman. I want to see if I could take this like once a month!

Unknown said...

For all of us that follow and read along daily to your posts, I'm sure everyone will understand that you need to take your time with healing. As Vickie said above, we even find your surgery and recuperating informative, in the event that we may, one day need surgery of some kind ourselves. You just sit back and take it easy until you feel well enough to continue! :)