Saturday, August 3, 2013


Judging by the flurry of emails and comments, yesterday's post must have resonated with y'all; although I'm really not surprised that we share the same frustration when fatigue robs us of so many precious aspects of our lives.

I have to admit that when I hit the "publish" button, I did so with a smidgen of reluctance. I felt as though that post was just one long wah-wah-wah of Julia self-indulgence.

Thanks for your comments and letters. It really helps me to know that I'm not alone in my anger and resentment that this dumb stupid disease creates.

Group hug, people..


Tricia said...

You are so good at expressing all that we've been feeling. I guess I am at a 50. I can do 4 hours doing my volunteering, but within the last 12 months since I've been off Plaquenil I sleep when I get home for 4 hours. Or I get up the next morning and try to get going and have to get back in bed and sleep 4 hours. It's times like that I feel like I am sleeping my life away and I get angry or feel sorry for myself. Once I was at the rheumy and was complaining about being so tired. He put me on Zoloft, and I remember wanting to shout at him,"I'm not depressed! I just don't feel good!" I have to admit, though, that I have wondered this last year whether I am just depressed and that's why I am sleeping all the time. It's just hard to figure it out, especially when you live alone and there's no one to give you their opinion. Thanks for all you do. I don't know how in the world you are able to write posts every day!

Shara from Seattle said...

I'm a solid 25.The daily digestive issues, the degenerative spine, a new bad reaction to the sun and the fact they took me off Enbrel and it has yet to be replaced, yep. a 25.

Last night my heels hurt too much to lay on the mattress when I went to bed.

I remember those heady days of shopping for an hour, going to a couple meetings during the week plus doctor appointments. a 50?