Saturday, November 10, 2012

There Should be a Fine for That

You can buy your very own clunky yet supportive shoes here

I came home last night from a charity Man Auction -- more on that another time, hoo boy -- feeling pretty smug. I had purchased some new Dansko shoes that made my feet very happy, didn't need a nap during the day, totally ditched Candy the cane, was able to stay upright through the charity auction, and sashayed into the house after 10pm which these days is the equivalent of staying out all night in Julia time.

Terese and I were easily the oldest people in attendance by at least two decades, but dang. We could still keep up with those young-uns, by golly.

Bow chaka bow bow...yeeeaaahhhh.

So while getting into my jammies, I was bragging to John about my remarkable energy levels and lack of pain and blah blah blah blah blah.....then got into bed, expecting to blissfully drift off to effortless sleep. And of course it didn't happen that way. I tossed and turned as my restless leg symptoms came roaring to life, my feet and hips and hands began to ache, and sleep was totally elusive. I woke up this morning cranky and sleep deprived.

Not fair! I followed the rules! I was a good girl! I had parceled my energy out very carefully before the outing, I had not eaten the cheesecake waved enticingly under my nose by my supposed good friend Terese, I did my bursitis exercises, and I wore my clunky supportive shoes. I eye-dropped my eyes, applied sunscreen, sucked down my pile of pills with filtered water, and brushed my teeth.

My rulebook for living with autoimmune clearly states that if a sjoggie follows these guidelines:
  • eats healthily
  • gets exercise
  • takes prescribed medications as directed
  • lives within energy limits
  • doesn't smoke
  • rarely drinks (a mango margarita on occasion doesn't count)
  • anthropomorphizes flamingos, cars, crows, schnauzers, and plastic cows
  • irritates family and friends by shoving a camera in their face at every possible moment
  • blabs about every facet of her life to the entire world via the internets

....then she should feel Reasonably Well

Dang. Just when I think that I have this disease figured out, reality smacks me upside the head and reminds me that Sjogren's syndrome DOESN'T PLAY BY THE RULES. BECAUSE THERE ARE NO RULES TO THIS GAME.

Silly me. I should know better. Reasonably Well? Pffftttttt.

Dumb stupid rule-breaking Sjogren's sydrome. Who named this blog, anyway?


annie said...

Too much excitement overload... the fact you were out and there were lots of people to talk to, the fact that you were feeling better and had energy to burn,that there was more noise that you're accustomed to hearing, bright lights, probably all contributed to your sleepless night. I'm stating all this through my own experiences. This always happens to me when I go out and there are lots of peope around.

Amy Junod said...

This post is a perfect example of why I'm hooked and can't wait to read your blog everyday.
Sjogren's IS stupid...and isn't a fair sport. Sjogren's Schmogrens.
Wishing you well today. Hope you feel better soon.

Anita Rowe Stafford said...

Oh Julia, feel better soon, how well I can relate, especially to the clunky shoes!

Robin said...

Ugh! I hate those nights when I cant sleep. Hope you feel better soon.

I wanted to let sjoggies who take Evoxac know that my dear pharmacist told me that it now comes in generic! Yay! no more $70 co pays and waiting until payday to get it. This just made my weekend.

Erica Casey said...

Thasnk you Robin for the update of the Evo... I never filled because of the cost.
Julia, I simply adore you. Your information is top notch, clear, factual and easy to print for my doctors to learn too lol. What I admire and love about you the most is that you say it like it is and help me to feel better, emotionally at least, knowing I am not alone in the disease, battle and the frustration

ShEiLa said...

I know I have limitations... the hardest part is sticking to them without feeling that I am holding my family & friends back. I am still learning how to cope I guess.