Wednesday, March 9, 2011

Ah, Geez..

Today has been hard. I hate hard days.

I'm really tired, totally brain foggy, I hurt everywhere, and I'm cranky. In other words - nothing really is new. I've had days like this for the past eight years.

I think the hardest thing about yukky days is that they're so unpredictable. The biggest question is always WHY? Why am I feeling crummy today when yesterday I was OK? I try to pace myself, I try to get regular exercise, I try to eat somewhat healthily, and I take the same medications every day. And in spite of it all, there are days when it's a major effort to just shower for the day.

I had made a coffee date with a friend of mine for today, and I knew I was in trouble about five minutes after awakening. I got up under the mistaken assumption that I was heading for the community center and pool. After pulling on all my clothes and packing my stuff in my gym bag, I realized that today I was NOT going to the pool, but meeting Cheryl.

So I headed back upstairs, took a shower, did my hair and makeup and chose a different set of clothes. By the time I was in Goldie heading down the freeway, I was already trembling and perspiring from the simple task of taking a shower and changing clothes..... and seriously wishing that I had cancelled.

I have absolutely no clue why it was easy yesterday and so stinkin' hard today. I sure wish that autoimmune disease came with some kind of instruction manual.


annie said...

An instruction manual would be great, so then we would know what to expect and how to proceed. When I say I'm exhausted, I get told "well, what did you do all day to get so tired?". My reply..." absolutely nothing".Other days I can accomplish more than I thought I could, even when feeling tired. The worst are the days where everything hurts, you're brainfogged and you don't know what part of the body needs what medication, so you just go back to bed. I hope you'll be better tomorrow?

Anonymous said...

All of the above, with a migrane...and I can't go to bed.

Amy Junod said...

I don't think that there is enough emphasis put on how debilitating that body snatched feeling is with Sjogrens.

You had a link in your Blog about a study done that referenced percentages of patients with various symptoms. You gave the medical terms and then the "Bratty Julia" terminology. It made me laugh so. We all wish we could yell out how we really feel. That felt like a shout out for all of us!

I hope that you're wrapped in a Snuggie taking it easy.

Julia Oleinik said...

Thanks, guys.

Sissyjane, oh my gosh - I can't imagine how rough it must be to have a migraine on top of everything else!! Hugs.

Anonymous said...

Wow - you perfectly echoed my thoughts about my day from half way across the world (Australia). And it does help SO much to see other people acknolwedge our shared struggle in wrting. And you do that so clearly and succintly. A rare gift indeed.

Thank you - and I hope today is a better day for everyone who needs it to be (but who knows because the nature of all this is you never know!)

Anonymous said...

That's something that really bugs me! If I do something, it's normal to be tired, but feeling like this just at the beginning of the day, I Hate it !
And you know you should not be tired, it's not "normal", so it feel even worse I think.