Monday, November 17, 2014
Guys. I know that my posts over the past few weeks's content contain little to no information about Sjogren's syndrome. Every day I look at my laptop and think, "TODAY I'm going to post about this study; or that study; or new diagnostics."
But it just doesn't happen because my brain is just not engaged in much of anything except my autoimmune body and it's reaction to surgery.
Preoccupied. Self-absorbed. Narrow scope of vision. Yep, that's me.
Yesterday, I thought it was high time for me to get to Sunday Mass; so I dressed up a teensy bit, meaning that I put something other than yoga pants and a sweatshirt, and off we went. I knew before I even left the car that this would be a low energy/high pain day but thought I'd just push through it. Mass only takes one hour. How bad could it be?
I lasted just until the end of the Gospel reading before I realized that I just had to go home and get flat. I snagged John and my son and we headed home after which I planted myself in bed with an ice pack and slept the rest of the day. This made me cranky.
I dislike inconsistency. My days are never the same; even before surgery entered the picture I've been frustrated by the weirdo patterns that my energy reserves create. But now, my abilities vary even more wildly from feeling absolutely fine to absolutely flat. And then there's the back pain to factor in.
Wah. Wah wah wah.
I've written several drafts of posts in which I attempt to return to writing about autoimmune disease and I promise that sometime soon I'll actually finish one and punch the PUBLISH button.
Posted by Julia Oleinik at 12:30 AM