Saturday, August 3, 2013

Thanks

Judging by the flurry of emails and comments, yesterday's post must have resonated with y'all; although I'm really not surprised that we share the same frustration when fatigue robs us of so many precious aspects of our lives.

I have to admit that when I hit the "publish" button, I did so with a smidgen of reluctance. I felt as though that post was just one long wah-wah-wah of Julia self-indulgence.

Thanks for your comments and letters. It really helps me to know that I'm not alone in my anger and resentment that this dumb stupid disease creates.

Group hug, people..

2 comments:

Tricia said...

Julia,
You are so good at expressing all that we've been feeling. I guess I am at a 50. I can do 4 hours doing my volunteering, but within the last 12 months since I've been off Plaquenil I sleep when I get home for 4 hours. Or I get up the next morning and try to get going and have to get back in bed and sleep 4 hours. It's times like that I feel like I am sleeping my life away and I get angry or feel sorry for myself. Once I was at the rheumy and was complaining about being so tired. He put me on Zoloft, and I remember wanting to shout at him,"I'm not depressed! I just don't feel good!" I have to admit, though, that I have wondered this last year whether I am just depressed and that's why I am sleeping all the time. It's just hard to figure it out, especially when you live alone and there's no one to give you their opinion. Thanks for all you do. I don't know how in the world you are able to write posts every day!

The Cranky Native said...

I'm a solid 25.The daily digestive issues, the degenerative spine, a new bad reaction to the sun and the fact they took me off Enbrel and it has yet to be replaced, yep. a 25.

Last night my heels hurt too much to lay on the mattress when I went to bed.

I remember those heady days of shopping for an hour, going to a couple meetings during the week plus doctor appointments. a 50?

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