Sunday, May 17, 2009

The Moisture Seekers

The Sjogren's Syndrome Foundation newsletter, The Moisture Seekers, just arrived in my mailbox. 

This edition has an especially interesting cover story by Frederick Vivino, MD, FACR.It is the first of a two part series discussing fibromyalgia in Sjogren's Syndrome patients. Dr. Vivino states in the article that some studies show that as many as half of Sjogren's Syndrome patients also have fibromyalgia, a condition characterized by diffuse body pain, difficulty sleeping, and chronic fatigue. 

It's worth a read. 

How do you get a copy? Simply by joining the foundation, which is easily done on their website. Go get yours! 

1 comment:

Wendy said...

I thought it was a very interesting article too, Julia. I never knew I had fibromyalgia until the Dr started me on Lyrica last month, for sleep (replacing Lunesta). Suddenly a whole lot of pain and sensitivity--to light, loud noise, etc.-- went away. It was a huge relief, and I began sleeping better too. But I'd never had the classic 'tender points' of Fibro. Nonetheless Fibro was suspected and treated because of my sleep issues. Whew! Even my skin has cleared up. Hope it lasts. Interestingly, the Wikipedia entry on Lyrica says it's prescribed in Europe for generalized anxiety disorder as well as nerve pain. For whatever reason, my whole outlook has changed for the better since starting it.

Did you also get the Biotene samples from the SSF? That mouth gel has given me huge relief from nightine mouth dryness, which has also helped me sleep. Didn't realize how much that had been biothering me. Thank you, SSF!

Thank you too, J...