tag:blogger.com,1999:blog-690850457652849477.post6820483008514147547..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Your Comments Deserve a Second Read Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-690850457652849477.post-17938925869568316412013-08-26T16:09:22.986-07:002013-08-26T16:09:22.986-07:00I have been reading periodic posts for awhile now.... I have been reading periodic posts for awhile now. I suffer from multiple auto problems. Rheum, lupus, celiac,lichen planus,sjogrens, thyroid, well you get my drift. I am my own advocate. I research as much as I can, all the time. I take plaquinel which was prescribed by Mayo in 2009, 200 mg twice daily, lyrica, twice daily, synthroid. I am very, very, protective of my liver, and of course how all my lab work is doing. My liver though has always been in my protection mode, for I have lost one brother to liver disease and also my other brother has the same problem and is very ill. They are both older than I am. From the 60's when things well were a little precarious with the drugs. Which they both indulged in and got Hep C. Thru watching the painful journey of both my brothers who did not stay in an addiction, but became fruitful and respected men in their lives. It is hard to see what happens to your loved ones with liver problems. So as I have made this very lengthy, I know first hand what drugs do to the liver, even the prescribed ones, they help our issues but can cause oths at the same time, as why I am very protective of what goes into mine. I am speaking for myself, not giving advice to anyone, just sharing what I feel. My brother who passed three years ago was not on medical marajuana, but my brother who is still living( not doing great) but he was diagnosed and several years farther along than my other brother. He has been smoking, ingesting Marajuana for years after he found out about his diagnosis, that's the route he went. With what I have seen, been investigating, and talked personally to individuals in the medical fields, specialized, I will be, when I get to a point I can do this legally will be getting the proper dosage and strength for managing my diseases. I know this is a very controversial talk in our country, has been for awhile. But like I say, this is my situation my body, I am my own advocate, and I believe for myself when I have the ability to do so it will be the path I will go. Not saying that I will stop all my med's, but will monitor how things are going with both sources and adjust as needed. I hope I have not offended anyone, just felt led to share. Pray for relief for all those in need, Deb<br /><br />P.S. I do alternative, such as try eating as much purity as I can, ( I am Celiac) , meditation, stretching, etc. whatever I need I try to envelope into my life, so I can feel productive, and positive about myself. Thanks for the read.Debnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-36944022385933939062013-08-24T11:48:05.047-07:002013-08-24T11:48:05.047-07:00As sick and as bad as I feel, I'm not on the h...As sick and as bad as I feel, I'm not on the high regimen of medications some of you are on, and for that I'm very grateful. I'm not thinking of the day when that could/will change, it' just too depressing. <br /><br />I'm not ambitious enough to plan ahead or think of the future, I just try to get through my day. I think people with chronic illnesses are more appreciative of life because it's quality of life vs. quantity, even if every day is a struggle and at times we feel like giving up. We are strong and stubborn , even while we are very fragile. Look at the duration of the illnesses of some of you...perserverance!<br /><br />When I'm flaring all I do is cocoon myself from everyone and become solitary and try to take care of myself. When I'm a little better, I do enjoy some form of gentle interaction with others, even just to get away from my health prblems and talk about other things and maybe have a laugh.It is important to have some kind of connection to others, even if you only keep in touch with one or two people....it helps not only your body but your mind. <br /><br />Priority is to take care of yourself and listen to your body and its needs and try to make yourself strong(er), and never mind what people think. No matter how long you're sick, I think your coping gets better but you still have moments of regret, frustration, anger, sadness, for the life that is no more. Unfortunately, this is the new reality, and for me, once I realized this, I was better able to cope with my illness(es) and all my feelings. Julia, thanks for giving me a place to air out my voice.annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-91290650749066236342013-08-24T08:15:17.437-07:002013-08-24T08:15:17.437-07:00What a helpful list of methods to cope with pain. ...What a helpful list of methods to cope with pain. I marked the post yesterday to keep and refer to. <br /><br />If anyone takes indocid though make sure that you also have a prescription for stomach protection. Of all the nsaids it is said to be the most harsh for gastro effects and I can assure you that it is. I took it when first diagnosed and it just added stomach trouble to the other symptomsAnnettehttp://yourgoldwatch.blogspot.ca/noreply@blogger.com