tag:blogger.com,1999:blog-690850457652849477.post6008133557234524316..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Important New Sjogren's WebsiteJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-690850457652849477.post-61517492023878999422018-11-29T14:43:44.110-08:002018-11-29T14:43:44.110-08:00Thanks for sharing this Julia. I've been told...Thanks for sharing this Julia. I've been told so many times I don't have Sjogren's or any autoimmune disease because of negative test results in spite of having ongoing and multiplying Sjogren's linked symptoms that I've given up in despair. To quote the doctor who did my lip biopsy, I've got "essentially normal" salivary glands but "lots of inflammation." No one seems to be able to explain all of the very obvious inflammation in so many systems at once with no blood markers of any kind. Nor have any idea how to treat it.<br /><br />I've decided just to keep playing whack-a-mole with individual manifestations (most recently Chronic Hives, GERD and Bladder Pain Syndrome), and stop chasing any overarching diagnosis. Still it's always interesting to read about other patients who get a diagnosis of Sjogren's in the face of negative test results and conflicting opinions from various medical professionals. My Optometrist was the last person to comment and he said, "I'm pretty sure you do have Sjogren's." For all the good it does me. <br /><br />It's good to see you posting again! Have a wonderful holiday season in your new home with your new grandson! And of course the rest of your family, but who notices any of them when there is such a cute baby around? ;-) Kellyhttps://www.blogger.com/profile/02013830406271839467noreply@blogger.com