tag:blogger.com,1999:blog-690850457652849477.post5722567034002022878..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Is the physical burden of Sjogren's Syndrome underestimated? Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-690850457652849477.post-60863392538541016702014-02-10T19:30:05.762-08:002014-02-10T19:30:05.762-08:00Thanks for posting this information. I will read t...Thanks for posting this information. I will read the studies as I'm sure they will be interesting. I like what anonymous has to say!annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-53274746207611229082014-02-10T18:55:33.619-08:002014-02-10T18:55:33.619-08:00I was disappointed and let down by the Tufts study...I was disappointed and let down by the Tufts study as I didn't feel it was an accurate depiction of Sjogren's. Thank You for posting this. I will most certainly read the studies you posted. LMnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-32455392864599701592014-02-10T12:49:54.147-08:002014-02-10T12:49:54.147-08:00Does it have to be binary? Why not just trust the ...Does it have to be binary? Why not just trust the people who have Sjogren's?<br /><br />If Dr. Epstein's cohort was 37 people diagnosed with Sjogren's who were employed and highly functional, there's nothing wrong with that. They should be allowed to do what they can without discrimination or judgement because of their diagnosis.<br /><br />As for the rest of us who struggle with the effects of Sjogren's, there is grace in admitting one's limitations and making adaptations and accommodations in living a meaningful life.<br /><br />Given that it is so difficult to diagnose, is there any reason to expect people living with Sjogren's to all be the same?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-8085928789527761702014-02-10T11:49:33.203-08:002014-02-10T11:49:33.203-08:00Julia, I am so grateful for the thorough, intellig...Julia, I am so grateful for the thorough, intelligent, caring, and sensible manner in which you curate information for your readers.<br /><br />More power to you!Anganahttps://www.blogger.com/profile/10655313284752770981noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-90017070554315591802014-02-10T07:56:28.733-08:002014-02-10T07:56:28.733-08:00Thanks Julia!Thanks Julia!Amy Junodhttps://www.blogger.com/profile/06060344931214062441noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-8604210369295721792014-02-10T07:56:14.355-08:002014-02-10T07:56:14.355-08:00Thanks Julia! Thanks Julia! Amy Junodhttps://www.blogger.com/profile/06060344931214062441noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-82881941222924377502014-02-10T07:19:15.218-08:002014-02-10T07:19:15.218-08:00Thanks for the followup, Julia.Thanks for the followup, Julia.Kate Snoreply@blogger.com