tag:blogger.com,1999:blog-690850457652849477.post5503939871553287138..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Fault LinesJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-690850457652849477.post-78228046827897078532011-08-27T20:00:24.610-07:002011-08-27T20:00:24.610-07:00Julia, so sorry to hear about the flares and moods...Julia, so sorry to hear about the flares and moods. We call those episodes "eyeball washes." My friend and former doubles tennis partner (still playing competitive tennis at age 80) gave me some advice earlier this year that has been useful.<br /><br />When her daughter was diagnosed with breast cancer she said, you give yourself permission to have a 15 minute eyeball wash session every day and use that time to cry, rant, rave, feel sorry for yourself or whatever else you need. After that, you paste a smile on your face and get on <br />with it as best you can. <br /><br />Well, I confess some days I've needed more than 15 minutes and/or more than one eyeball wash lately for reasons beyond Sjogren's, but giving yourself permission to collapse without guilt is really amazing and when your family can allow it as well, it's very therapeutic. <br /><br />The allowed eyeball wash plan allows everyone to get on board and let it go.Kellyhttps://www.blogger.com/profile/02013830406271839467noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-42589504048029741602011-08-22T10:50:53.607-07:002011-08-22T10:50:53.607-07:00Don't forget mom, we have a ton of nerf guns a...Don't forget mom, we have a ton of nerf guns and a bunch of targets in the backyard!!!! :-DOrb Weaverhttps://www.blogger.com/profile/07031473911940638535noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-194435313078370272011-08-22T07:10:23.997-07:002011-08-22T07:10:23.997-07:00Whew! I was beginning to think that I was the only...Whew! I was beginning to think that I was the only absolutely 'off my rocker' at times.<br /><br />It can be hard when others don't get it... of course most of this I don't share. My husband has his opinions and for the most part he doesn't get it at all. (he is trying-but clueless)<br /><br />I am hating my new problem... insomnia. What??? I am dog-tired most of the time... almost relieved at the thought of sleep... then I lay down... and wait two hours or more until sleep comes. Why???<br /><br />I love naps! (when I get them) Sometimes I have to have them... I get physically ill if I don't stop whatever I am doing and rest.<br /><br />Thanks for letting me know that it's ok for me to be unhappy about all of this.<br /><br />ToOdLeS.ShEiLahttps://www.blogger.com/profile/12439819553846591903noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-18185290957012894042011-08-22T06:38:45.014-07:002011-08-22T06:38:45.014-07:00Julia, how appropriate this post is. I am going th...Julia, how appropriate this post is. I am going through a hellish summer with lots of pain in head and neck and having pain and trmors in my arms and legs, and getting nowhere with my doctors. Last weekend I was in so much pain,I thought my head would burst open and I just sat down and started crying.Now, I cry easily when I watch the news/read sad stories, but I NEVER cry for me. After the crying, I started to feel REALLY ANGRY AND FRUSTRATED at what I was going through, at the doctors who weren't much help, at my financial situation.....nothing was spared.<br />I did feel better after that, I was able to cope and see to what meds I should have taken to ease the pain. <br /><br />No matter how good your support system is, you are basically coping alone with your illness, something you notice when you're going through a particularly rough time.I want to thank you for always giving us, your readers, a helping hand and a comforting shoulder whenever we visit your site. I know you have helped me enormously. Sorry for the long diatribe....I needed to vent!!annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-22483467134901852782011-08-22T04:36:29.123-07:002011-08-22T04:36:29.123-07:00Thanks for this post, Julia! Why, I was just havin...Thanks for this post, Julia! Why, I was just having a foul-mood-day yesterday--my POOR husband! Sheesh. But I do get so so angry at times, and indulge in glorious pity parties at least once a week. Good to see I'm not alone.......Leslie at SugarAndSpiceADK.https://www.blogger.com/profile/09311900004547134837noreply@blogger.com