tag:blogger.com,1999:blog-690850457652849477.post4505873190853829272..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Playing Appointment HookyJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-690850457652849477.post-4994107018499197992013-11-08T11:51:05.882-08:002013-11-08T11:51:05.882-08:00P.S.
My inner child totally decided that she did ...P.S. <br />My inner child totally decided that she did NOT have Primary Sjogren's Syndrome. Twice. Yep. Just up and told everyone in the family that "NO, I do NOT have IT and I am NOT taken Plaquenil anymore". It lasted about 3 to 4 weeks each time, then I took the dumb medicine again. My fiancé was a real angel through all of it with "Okay, baby carrots (you know... "peas and carrots") (he's the peas :) No more Sjogren's".<br /><br />Now, my inner child doesn't persist as stubbornly that "IT" does not exist anymore(shhhh), but she does decide that (by sheer willpower)she will NOT be sick for the next 3 or 4 days (frequently). <br /><br />It's micro-manageable to be autoblind to my immune-navigation system for a few days at a time.Anonymoushttps://www.blogger.com/profile/07380351518226851228noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-36383298931179775492013-11-08T10:08:35.854-08:002013-11-08T10:08:35.854-08:00Oh, you made me laugh! Every single person who kn...Oh, you made me laugh! Every single person who knows me well knows that I have an inner child and she acts (and sounds) a lot like your BICJ. <br /><br />You made me laugh all the way down to my toes. THANK YOU!<br /><br />My inner child was in serious nonconformist mode after my (our) brain MRI with contrast yesterday. Oh yes, it was my 7 year-old inner Kimberly with glasses and pigtails, replete with silent "I can't stand your whole guts for making me doing this" tears inside the MRI machine (which ran downwards to my ears and around the overwhelming yellow sponge ear stoppers). This followed by a stop at Walgreen's on the way back to work for Reese Cups and Coca-Cola and culminating into an entire evening of Hallmark Channel Christmas movies and a dinner of homemade banana nut bread and chocolate milk because it sucks and they can't do anything about the sucky autoimmunes who moved in uninvited!<br /><br />Those who know me and love me say that my inner child is (at best)<br />"consponchuous" (her very own "made up" word and she loves it). Definition: Consponchuous: verb. nonconforming, impossible, stubborn, unique, one of kind. Example: No body is going to make her do anything that she doesn't want to do she is so consponchuous!<br /><br />You are so blessed to have a good rheumatologist. I am still trying to break through my Dr's "reserved-don't ask questions" "bad patient for asking me what that means" bedside manner.<br /><br />I just know that there is going to be a Christmas Hallmark Channel movie where a handsome rheumatologist moves in to town, opens shop, saves the girl and makes her feel better. He serves her marshmallows instead of DMARDS and is wise and doesn't say "It's definitely autoimmune sjogren's, but I don't know what the future holds. We will have to wait and see what else pops up in your blood work, on your body, in your joints"... blah-blah-blah-hum-bug! <br /><br />Thank you for what you do with this blog. Have a wonderful day Julia! Anonymoushttps://www.blogger.com/profile/07380351518226851228noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-54335697170393449362013-11-08T08:43:45.054-08:002013-11-08T08:43:45.054-08:00Amen, sister!!! Really, is it going to make any di...Amen, sister!!! Really, is it going to make any difference whether you go now or next month? Last week, I got sick and tired of taking my evening pills (nothing too important: statin, folic acid, prilosec), that I said to myself "Hey, I am so tired of taking pills, so I am NOT taking them tonight." It felt good. I had control over my own decisions and life, and wasn't a slave to the disease and all its who haws. Feeling like you have control over something now and then is a good feeling, right? xoxostephaniehttps://www.blogger.com/profile/01590844358772463697noreply@blogger.com