tag:blogger.com,1999:blog-690850457652849477.post2400696846718589340..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Robert Fox, MD, PhD: 2015 International Symposium on Sjogren's Syndrome Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-690850457652849477.post-27388517390262487522016-12-06T06:41:33.974-08:002016-12-06T06:41:33.974-08:00My advice, take all these doctors, load them on a ...My advice, take all these doctors, load them on a ship and sink it in the Pacific Ocean. Problem Solved.<br /><br />I have had Sjogren's since 2007. I was the one to diagnose it from reading medical texts, not a doctor, in fact when I presented a rheumatologist with my symptoms, blood work and a text book on Sjogren's he dismissed it, saying " Men in your shape do not have Sjogren's" From that point on I began treating it myself, first by going online and purchasing medications overseas to help control it and having my GP run blood work to check for issues. Then I began reading about reversing it. I know for a fact the trigger that caused it was antibiotics, so I spent over 3 years following up on that. Luckily by this point science was coming around to being able to run DBA on fecal samples, so I started sending in samples and finding out what bacteria I had in me and what was normal. Anything that was abnormal I tried to fix, if it was too much I used antibiotics to bring it down, if too little I read online how to bring it up, took almost 2 years, but one day the saliva started to come back, then the dry eyes, constipation, neurological issues and brain fogs,even my lungs were working better. That was over a year ago, to this day nothing has come back. So like I say, sink the ship, but first make sure they are all on board. Do the same for yourself, you are an RN, and should be even better able to do this,don't crawl on your hands and knees for a pill to make youself feel a bit better today. FIX YOURSELF!John Manonoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-26077553779659252192015-08-10T15:24:14.839-07:002015-08-10T15:24:14.839-07:00Thanks so much Julia for deciphering for us. (I re...Thanks so much Julia for deciphering for us. (I really REALLY need it)<br />I'm hopeful by the new guidelines. I am happy for any indication that the medical community is pulling together. By the guidelines it makes me feel like there's more order to the team. Amy Junodhttps://www.blogger.com/profile/06060344931214062441noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-1734177295028335802015-08-10T10:16:42.130-07:002015-08-10T10:16:42.130-07:00Good Summer to you and yours girl, I certainly hop...Good Summer to you and yours girl, I certainly hope that when they passed the torch they change their own energy. And the rats. Did you hear that scientists have been doing the labs with rats all wrong? After years they figured out that a female rats immune system is different than a males and for the last century, male rats are all they used in science! Shara from Seattlehttps://www.blogger.com/profile/04454085416180469172noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-59956864216585093802015-08-10T07:54:04.556-07:002015-08-10T07:54:04.556-07:00Thanks, Julia. Yesterday I read the new clinical g...Thanks, Julia. Yesterday I read the new clinical guidelines for management of ocular symptoms in the latest Moisture Seekers. As always, I will encouage everyone to sign up for for your daily blog emails - when I get around to producing the newsletter for this month! So grateful you are doing this for the SS community. ;-)Anonymoushttps://www.blogger.com/profile/01877137957694124583noreply@blogger.com