tag:blogger.com,1999:blog-690850457652849477.post175268704140048774..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: How Good is Good Enough?Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-690850457652849477.post-55923925059098560572011-07-13T13:44:15.302-07:002011-07-13T13:44:15.302-07:00HI Christine - so glad you found us! Jump into the...HI Christine - so glad you found us! Jump into the conversations here anytme - we all can benefit from each other's experiences.<br /><br />Annie - You're so right. Who knows what these diseases bring each day?? I wish you well with your rheumy appointment too. We'll have to compare notes.Julia Oleinikhttps://www.blogger.com/profile/04857783768340014545noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-31482660953543436512011-07-12T17:50:52.357-07:002011-07-12T17:50:52.357-07:00I have been on plaquenil for two years now, and I ...I have been on plaquenil for two years now, and I can honestly say I see no improvement with pain and fatigue. My pain is changing and I have more head/neck pain and more trouble in my knees, more joint pain and exhausting fatigue. I guess this illness is like a revolving door...something might go out , but then something else enters.<br /><br />How does one handle so many differing, but overlapping conditions, and the ever increasing amount of drugs used to treat all these conditions?. I think it's reasonable to feel that as one ages, one will be subjected to more health problems and ongoing pain, but it is not reasonable to feel like C**P all of the time at our age. I honestly don't think doctors are able to predict how well your meds will help you in the long run. I've had experience in the past with pills that helped really well, but after a period of being on the medication, the pills stopped working. Are the pills ineffective, or is the illness changing their efficacy?<br /><br /> Julia,I wish you well with your rheumatologist. I also see mine next week, with many questions.annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-40591135442012368762011-07-12T11:06:00.519-07:002011-07-12T11:06:00.519-07:00Hi Julia ~ Hit by yet another new Sjogren's sy...Hi Julia ~ Hit by yet another new Sjogren's symptom today, I was doing a Google search and came across your blog. I am delighted beyond belief because I have searched and searched for blogs related to Sjogren's for quite a long time now with no luck.Thank you so much for writing about this crazy disease! ~ ChristineChristine https://www.blogger.com/profile/09892346661528968954noreply@blogger.com