tag:blogger.com,1999:blog-690850457652849477.post1531205986824044072..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Say WHAT? -- Sjogren's Syndrome and HearingJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-690850457652849477.post-81679021700819454032022-12-24T02:56:45.936-08:002022-12-24T02:56:45.936-08:00Yes. I have quite significant hearing problems (fr...Yes. I have quite significant hearing problems (from childhood onwards, no2 aged 60 (2022). I have considerable hearing loss in both ears (bilateral) from childhood, but my left one is quite severe. I also have bilateral continuous Tinnitus (however, I also have injury to cervical spine C4-C7 & I suffer from chronic severe Migraine with brainstem aura). I'm also unable to suppress surround sound or faze out unwanted background sound.Anonymoushttps://www.blogger.com/profile/05022046167946540210noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-55556643049930644512021-03-22T00:30:38.353-07:002021-03-22T00:30:38.353-07:00I have Sjogren's Syndrome of 50 years duration...I have Sjogren's Syndrome of 50 years duration. My left Eustachian tube is stuck open (took 2 years for accurate diagnosis even though I knew from my research what was wrong); this fully happened mid-2015. Now (started about Oct 2020) my right ear pops all the time, not just now and then but rapidly maybe half a dozen times then might stop for briefly then start again, seemingly totally at random. This is not a stuck open (patulous) Eustachian tube because it happensd even when lying down and I often wake with it in the morning. My feeling is that it is probably the right Eustachian tube popping that is Sjogren's related, possibly because the membranes, being dry, become sticky. I have no idea what caused the patulous Eustachian tube. I do, with all the other Sjogren's symptoms and others beside (I am about to turn 76), feel most unloved by the universe!Maureen Tnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-64827667087075680982019-01-24T18:55:49.973-08:002019-01-24T18:55:49.973-08:00I have hearing loss greater in one ear...but in bo...I have hearing loss greater in one ear...but in both, the eustachian tubes seem to close up, requiring me to balance the pressure in my ears by holding my nose and mimick blowing my nose at the same time to open the tubes. It definitely works but only for a short time...so if I am at a lecture or movie I clear my tubes many, many times.<br />Trying to delay a getting a hearing aide ...I know that day is coming soon...<br />Peggypeggynoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-6568939964481865172019-01-22T10:22:36.788-08:002019-01-22T10:22:36.788-08:00Hi Julia, I also have tinnitus as Annie mentioned ...Hi Julia, I also have tinnitus as Annie mentioned and regular dizziness but it has not been diagnosed as menieres. But I've wanted to know for a number of years if lack of earwax is a symptom of Sjogren's? Several years ago I had intense itching inside my ear, I actually felt like my brain was itching! I ended up at an ENT office and the doctor came in, looked into the that was NOT itching and proclaimed " Well I see the problem, you have no wax whatsoever in your ears." Anytime the itching returns I put oil in the ear. Is this common? My Mychophenalate doesn't seem to help with it.<br />Thanks! Diannetreasuresanddiscovers.comhttps://www.blogger.com/profile/08117356495940195282noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-67240677822779747172019-01-22T09:40:11.417-08:002019-01-22T09:40:11.417-08:00Hi Julia,
I'm not sure if it is autoimmune re...Hi Julia,<br /><br />I'm not sure if it is autoimmune related, but I suffer from tinnitus, menieres disease, and have had spinning vertigo in the past. Horrible things to deal with as you feel dizzy, off balance, nauseous, and have that buzzing/ringing in your ears to contend with most of the time. The menieres can happen suddenly and last for quite a few days. I have lost some hearing in one of my ears more so than the other, so far!annienoreply@blogger.com