tag:blogger.com,1999:blog-690850457652849477.post1374913214906283334..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Dr. Sarah Schafer: Exercise and Sjogren's Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-690850457652849477.post-59059971623958118262019-07-16T18:40:59.879-07:002019-07-16T18:40:59.879-07:00I joined the swim club in Sun City, Hilton Head is...I joined the swim club in Sun City, Hilton Head island. I went to a swim meet in Feb.2019. I swam in 8 events over 2 days. I have not been the same since. I have been in a Sjogren's flair ever since. I didn't know that this was too much. Anyway, I still am in a flare and I am on Prednisone. I keep getting sinus infections, which I see is normal for Sjogren's.Ellenhttps://www.blogger.com/profile/00323634622272161491noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-41614054128822455722017-04-26T06:45:25.499-07:002017-04-26T06:45:25.499-07:00I have two great suggestions for those of you with...I have two great suggestions for those of you with migraines, which have plagued me as well. <br /><br />1) I cut out dairy and this alone helped immensely! You can easily do a 4-week trial and see if<br />it helps you<br /><br />2) I started doing TM (tm.org) which is the best-studied form of meditation and has alot of research backing its benefits. It's easy to learn, and has helped immensely in reducing my stress level, which in turn reduces my Sjogren's symptoms. I highly recommend this!<br /><br />Good luck to everyone!<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-91302600171915800352017-03-11T17:36:36.398-08:002017-03-11T17:36:36.398-08:00Hi,
I have to tell you that your blog is my bible....Hi,<br />I have to tell you that your blog is my bible. Whenever I have a new symptom I check with you first. Thank you so much, you save my senity.<br />MarieAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-6026655270325403302016-03-15T06:22:05.371-07:002016-03-15T06:22:05.371-07:00Have you heard about Coimbra protocol for autoimmu...Have you heard about Coimbra protocol for autoimmune diseases? It allowed me to exercise again and quit methotrexate and Deflazacort. Sofiahttps://www.blogger.com/profile/02776661383484510499noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-73585301908716399132016-03-15T06:21:59.968-07:002016-03-15T06:21:59.968-07:00Have you heard about Coimbra protocol for autoimmu...Have you heard about Coimbra protocol for autoimmune diseases? It allowed me to exercise again and quit methotrexate and Deflazacort. Sofiahttps://www.blogger.com/profile/02776661383484510499noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-28394311043690811602016-03-13T15:14:14.278-07:002016-03-13T15:14:14.278-07:00I've had good success with Pilates.I've had good success with Pilates.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-60966303961504625002016-03-11T02:15:33.449-08:002016-03-11T02:15:33.449-08:00Hi Jules, my condolences for your loss and for you...Hi Jules, my condolences for your loss and for your Mum's illness. Also apologies for my long silence. I've retired, moved cities and I've walked the Camino. 800 km. The first 200 km nearly killed me but once my Sjogren's bugs got over the shock and realised that their host was not actually going to kill herself they settled down and I was able to make it to Santiago slower than most but in a reasonable physical state. By the time I finished the walk my feet were the best they had been in years, my BP was so good I had to wean myself off the beta blockers, my gut issues were much improved, my mental health was completely turned around, and my aches and pains didn't seem any worse than lots of others doing the walk. I felt normal for the first time in years. Heck I almost felt strong. Since I've been back home I've taken up swimming and gardening and love doing both. Yay for exercise.Hedahttps://www.blogger.com/profile/00953091713220195010noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-34498184581218856692016-03-09T09:26:35.310-08:002016-03-09T09:26:35.310-08:00An interesting article, thank you for sharing. I a...An interesting article, thank you for sharing. I also suffer from joint hypermobility and I think I also have mild POTS too (can it come and go?). I've only recently been diagnosed but have suffered badly with fatigue since I got pregnant about 3 years ago. I'm still able to work part time and be a single mum. I go to the gym once a week to work with a personal trainer and try to do Pilates once a week for core strength (I also have Ankylosing Spondylitis) so feel that this suits all my needs the most. I must say I started exercising about 6 months ago and for the last couple of months my fatigue has been better �� I've also tried eating more healthily with more turmeric and ginger. I hope this improvement in fatigue continues!Anonymoushttps://www.blogger.com/profile/04514875099846285972noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-35415253639338351822016-03-09T06:14:32.377-08:002016-03-09T06:14:32.377-08:00I enjoy walking outdoors but if the weather is bad...I enjoy walking outdoors but if the weather is bad I use my treadmill.Suenoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-64692131608525251832016-03-09T00:53:32.063-08:002016-03-09T00:53:32.063-08:00I am a walker and if weather doesn't allow me ...I am a walker and if weather doesn't allow me to walk outside I do an indoor workout of some sort. I often say I don't go fast and I don't go far, but I go. My dog is an excellent motivator and walking partner. Even if I can accomplish nothing else in a day, exercise gets done.Marionnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-35136696490896922492016-03-08T17:58:17.991-08:002016-03-08T17:58:17.991-08:00I walk for exercise, and am certainly not able to ...I walk for exercise, and am certainly not able to "push" it, but I can see how it might be possible if I was horizontal. Logistics are a deal breaker right now, but this is something that I intend to work towards. Thank you Julia, and Dr. Schafer for this information.Anonymoushttps://www.blogger.com/profile/13403715139172052315noreply@blogger.com