tag:blogger.com,1999:blog-690850457652849477.post9077339411879647907..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Are There More Mice in My Future? Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-690850457652849477.post-47831184628203962752013-12-06T19:53:18.096-08:002013-12-06T19:53:18.096-08:00Julia, thank you for explaining SCL. I have a bett...Julia, thank you for explaining SCL. I have a better understanding now of what it is. I guess the lupus part is a little confusing.annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-47813695194583083022013-12-06T18:48:12.522-08:002013-12-06T18:48:12.522-08:00Did you see the medscape article called Sjogren Sy...Did you see the medscape article called Sjogren Syndrome: An A to Z Update by Dr Robert Fox. (my favourite Sjogren's guy). I have a link but you need to sign in to Medscape I think. It's a recap of what went on at the ACR meeting.<br />http://www.medscape.com/viewarticle/815236?src=wnl_edit_tpal <br />The first thing I really read about Sjogren's was his dry.org many years ago. Strange how you can feel that you have had it forever.Annettehttp://yourgoldwatch.blogspot.ca/noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-19739733069755200652013-12-06T10:57:34.095-08:002013-12-06T10:57:34.095-08:00Yes, I'm so thankful that I have Dr. Young Guy...Yes, I'm so thankful that I have Dr. Young Guy. <br /><br />Annie, I have subacute cutaneous lupus -- which is not the same as THE Lupus. It manifests itself pretty much in relationship to flares of my autoimmune activity: when my rash is really busy, so is my immune system. Seems to diminish with prednisone increase and the riituximab eliminated it all together. Julia Oleinikhttps://www.blogger.com/profile/04857783768340014545noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-90125491124908412522013-12-06T09:33:20.706-08:002013-12-06T09:33:20.706-08:00Julia, does this rash appear and disappear like an...Julia, does this rash appear and disappear like an allergy rash and does it itch, or does it stay permanently on your skin? I often get strange skin rashes that come and go for no reason.<br /><br />If it worked for you before, maybe it's worth trying the rituximab again, and this time the team knows what to look for if there is a reaction like you had previously.annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-35907509764079062792013-12-06T08:12:40.010-08:002013-12-06T08:12:40.010-08:00I guess it could be one of those "careful wha...I guess it could be one of those "careful what you wish for scenarios, but you did so well before, I would think it might be worth a second chance. You have a great doc!mcspireshttps://www.blogger.com/profile/10129916102784468854noreply@blogger.com