tag:blogger.com,1999:blog-690850457652849477.post8270263951249953312..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: A Rose By Any Other Name....Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-690850457652849477.post-18413678503839860122011-05-11T08:01:29.991-07:002011-05-11T08:01:29.991-07:00I Like "Reasonably Well", and although I...I Like "Reasonably Well", and although I love the painting you posted, I think more the thorns than the blooms appropriate. I was dx'd with a demylinating disease of unknown idiology...yup...a WTH dx. After awhile they said well....it looks like MS, even though it presented differently. After years of learning everything MS and taking DMD's to no advantage there came Lupus and Sjogrens and now what they believe is that it was Sjogrens all along.<br />I think I should coin a blog name "autoimmune soup" and hope not to add more ingredients.Bubbiehttps://www.blogger.com/profile/00243081013090420013noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-50057969914796767832011-05-06T13:19:39.259-07:002011-05-06T13:19:39.259-07:00Julia - Just gotta say that "Reasonably Well&...Julia - Just gotta say that "Reasonably Well" still works - because that's your attitude, not just your status. You're going through some tough adjustments right now, but based on what I've learned about you from your blog, you'll find a new equilibrium here somewhere, with, no doubt, some appearances by Inner Bratty Julia. <br /><br />I've used your attitude as a bit of a role model in my own adjustment to Sjogren's- how can I live reasonably well with the more limited physical and mental resources that I now have? <br /><br />We all come up with the answers that work for us, but it is all based on that basic question. <br /><br />Hope you're feeling better soonkatenoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-29202809665524715152011-05-05T08:42:25.335-07:002011-05-05T08:42:25.335-07:00Recently diagnosed with lupus and secondary SjS, I...Recently diagnosed with lupus and secondary SjS, I looked for some type of online support and found your blog. Just love it's upbeat tone! I've adopted "reasonably well" as my response when folks ask me how I'm doing :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-80898169288595430612011-05-05T06:40:14.936-07:002011-05-05T06:40:14.936-07:00I'm so sorry that your Sjogren's brought i...I'm so sorry that your Sjogren's brought it's 'friends' to the party. Like you I started with Sjogren's and it didn't end there, I ended up with Lupus and the skin form of Scleroderma on top of it. I'm always afraid to go to the doctor now in case I get another something lol.<br /><br />I do like that you dedicate your blog a lot to Sjogren's though, not a lot of them out there. It helps to educate because of the misconceptions out there of Sjogren's. Thank you for that!BDhttps://www.blogger.com/profile/10660018966658744459noreply@blogger.com