tag:blogger.com,1999:blog-690850457652849477.post7869680071123209460..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Energy Crash and Burn: Defeat? Or a Time to Learn? Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-690850457652849477.post-28913234995845220422013-10-30T00:22:35.068-07:002013-10-30T00:22:35.068-07:00Oh Julia, this sounds so familiar to me. Just a fe...Oh Julia, this sounds so familiar to me. Just a few weeks ago, I pushed myself to go to church because my in-laws were coming with me (hubby was out of town). About halfway through the service, I started sweating and feeling very nauseous and faint. I was unfortunately kind of stuck in the middle of the pew, but the second the closing prayer was said, I took off running and vomited in the bushes just outside the door. Yeah, that was not embarrassing. I don't even know how I ran in my heels, but I sure did.<br /><br />I'm trying to figure out why Sundays are so tough on me because I too love going to church. I have a couple of suspicions - the fluorescent lighting and everyone's perfume. I know they contribute for sure. Plus like you pointed out, the effort it takes just to get ready is exhausting. This last Sunday, I did most of my getting ready on Saturday (shower and hair) and fared a little better.<br /><br />Thanks for sharing - I thought I was the only one who had this problem with making it through church.Tanahttps://www.blogger.com/profile/07937751609106308717noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-59502666790187881202013-10-29T16:41:05.813-07:002013-10-29T16:41:05.813-07:00Julia,
Is this something you've suffered thro...Julia,<br /><br />Is this something you've suffered through since the beginning of your diagnosis, or has it worsened as your illness progressed? Just wondering what fate awaits for the rest of us.<br /><br /> I'm mostly okay, but I do have days, not as bad as yours, where I feel very weak and not able to stand up much, and this brings on light-headedness and nausea. Rest up and hope you get better.annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-23801255515610224682013-10-29T12:38:05.500-07:002013-10-29T12:38:05.500-07:00Did you snap that picture Sunday? It sure is prett...Did you snap that picture Sunday? It sure is pretty with the leaves scattered about. <br />I hope that this crash finds a quick recovery. <br />Be well. <br />Amy Junodhttps://www.blogger.com/profile/06060344931214062441noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-80017140070895672772013-10-29T11:53:20.934-07:002013-10-29T11:53:20.934-07:00Is this happening as you start to relax and unwind...Is this happening as you start to relax and unwind? This is one of the (thankfully) few symptoms I get. I have noticed that it happens as I stop/slow down rather than when in full flight. I go around the supermarket and then get to the checkout and the hot/cold buckets of persperation startand I wait in line. I stop what I'm doing and this starts around home. No prior warning, it never happens as i am actually doing any physical activity.Gillnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-12721455643273948282013-10-29T11:31:09.370-07:002013-10-29T11:31:09.370-07:00I have been following your blog for sometime now, ...I have been following your blog for sometime now, but never posted a comment until now. <br /><br />I only got my official diagnosis for Primary Sjogren's last week, but was declared a "suspect" already in Feb. Your blog has been my main source of information about this condition, and I would like to thank you for it. <br /><br />Even though Sjogren's is common here in Finland too, it is very difficult to get information on how to cope with SS. I have now decided to follow your path, and have set up a bi-lingual blog (English and Finnish) in an effort to start collecting information and sharing my experiences in trying to come to terms with this diagnosis. I've added your blog address to my blog, hope that is ok: http://itchingandbitching.blogspot.fi<br /><br />You are an inspiration on this side of the Atlantic as well! :-)<br /><br />The very best from Finland!Mirabellahttps://www.blogger.com/profile/16751189363738209899noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-82009566246701426872013-10-29T09:11:49.872-07:002013-10-29T09:11:49.872-07:00I still haven't learned. Maybe one day I'l...I still haven't learned. Maybe one day I'll eventually come to that point. It seems to sneak up on me, even when I recognize the signals. Or perhaps I'm ignoring them hoping it will all go away?<br /><br />Wishing you well!LMnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-6073551973807502922013-10-29T08:37:05.322-07:002013-10-29T08:37:05.322-07:00That does sound like a good sign. Tantrums take a ...That does sound like a good sign. Tantrums take a lot of energy, even when some is psychic. Here's a toast to strategy and finding ways to 'work around'. <br />I am taking the unbeliever route for the holiday we are going on (3 weeks in BC) and having a systemic shot of prednisone. Maybe that will even see me through Christmas. I do wonder if it depletes your reserves and ultimately you pay for it. Have only had 3 or 4 in 30 years. <br /><br />I liked your Halloween costume. I'm still in PJs today after yesterdays conference. My husband got locked out and came to get me on the streetcar. Took a while.Annettehttp://yourgoldwatch.blogspot.ca/noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-3036638956329286692013-10-29T06:49:33.360-07:002013-10-29T06:49:33.360-07:00Julia, I'm sorry you are having a crash episod...Julia, I'm sorry you are having a crash episode. I have just built up to the good day followed with at least one day stuck in bed routine. It's taken me a long time to accept this as part and parcel of AI living. I'm still working to get to the shopping in the store phase but I have hope. In the mean time... Amazon Rocks! Lol. At least I can do my Christmas shopping through them. Positive thoughts and hugs for you. Anonymoushttps://www.blogger.com/profile/06709330056885238109noreply@blogger.com