tag:blogger.com,1999:blog-690850457652849477.post7825821567897793277..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Glandular and Extraglandular Manifestations of Sjogren's SyndromeJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-690850457652849477.post-22876617092196490132021-02-26T14:48:16.950-08:002021-02-26T14:48:16.950-08:00I have sjrogrens and the lymph nodes along the rig...I have sjrogrens and the lymph nodes along the right side of my face, ear, jaw, and neck are all always swollen. It feels like there's heavy cotton balls inside there. It is painful at times. Ice packs work best at numbing the pain. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-88701516543666643782012-01-25T15:11:46.032-08:002012-01-25T15:11:46.032-08:00My very first symptoms involved my lungs.
@Daisy...My very first symptoms involved my lungs. <br /><br />@DaisyMay: I don't know if it's Sjogren's, but I also have swollen lymph nodes going down the sides of my neck. They are always a little swollen and sometimes a lot.Anonymoushttps://www.blogger.com/profile/00920839235404358348noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-33528825601371722552011-04-30T11:11:21.046-07:002011-04-30T11:11:21.046-07:00Could sjogren's also be responsible for lymph ...Could sjogren's also be responsible for lymph node pain (and possible swelling) in the groin, underarm and down the sides of my neck?<br /><br />My GP is baffled by these symptoms, I had an ultrasound on the largest nodes which they think looked normal. Going to see a rheumatologist for sjogren's at some point but have to wait for an apt. Just wondered if anyone could answer this question in the meantime.DaisyMayhttp://hubpages.com/profile/Moon+Daisynoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-31498867585720850782010-06-02T18:00:56.516-07:002010-06-02T18:00:56.516-07:00Well I was confirmed today I have SS, I failed the...Well I was confirmed today I have SS, I failed the tear test, I have no tears, the dry mouth is the worst of worst, is there any partial control of the dry mouth? I am so tired of chewing gum I could scream, told by ENT to chew fruity gums and stay away from the mint types of gum as those can cause dry mouth, boy was he right, i wanted some so bad for the taste but it only lasted about 2 minutes in my mouth did not have enough saliva and was about to start choking my mouth and throat was so dry, this is really the pitts of a syndrome and the other places of dryness os horrible. I guess one just needs to read and learn how to maybe control it alittle. Are the any foods one should stay away from??Joey E.noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-40552176931695818122010-01-15T19:27:47.501-08:002010-01-15T19:27:47.501-08:00Yeah my symptoms cover quite a range too, though I...Yeah my symptoms cover quite a range too, though I'm blessed in the things that have not yet gone haywire. Speaking of reading due to SS ... this is a slightly different direction...a few years back I was looking for a book more on coping emotionally (I had already done a lot of educational reading, still do, and needed a morale boost). The only one I found that hit the spot was "But You Don't Look Sick" (not related in any way to the website and the 'spoon theory', though that is good too). Just a suggestion for anyone who might be interested:)Jenny Phttps://www.blogger.com/profile/14870488565611786295noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-74626046703297839622010-01-15T17:34:37.807-08:002010-01-15T17:34:37.807-08:00I printed this pamphlet off the sjogren's site...I printed this pamphlet off the sjogren's site last year, when I was diagnosed with this illness. It's very helpful as a reference. For an illness that no one knows much about (including the doctors!), it is very complicated and very serious. I seem to fall like you do...I have most of the symptoms in each category. Thanks to people like you who have informative blogs and pertinent sjogren's sites, we have more info that any doctors can give us. Ultimately, patients are their own resources and learn to navigate how best to deal with their particular symptoms because they are the ones who are sick. Thanks again, Julia.annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-5873627397070004092010-01-15T12:52:10.488-08:002010-01-15T12:52:10.488-08:00I have learn somethings. I'm, too, blessed wit...I have learn somethings. I'm, too, blessed with both symptoms.<br />I'm in a "I have to read all I can on Sjogren" phase too. And it seems this illness is far more complicated than I though first.Anonymousnoreply@blogger.com