tag:blogger.com,1999:blog-690850457652849477.post6970281827135674404..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: How Are You Holding Up? Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-690850457652849477.post-31413769124705444032014-12-24T09:21:00.991-08:002014-12-24T09:21:00.991-08:002012 Christmas-totally overdid it. My response? Fa...2012 Christmas-totally overdid it. My response? Family cruise Christmas 2013. Wonderful! Since we can't afford to do this annually (6 adults! Mucho $$!) I am working hard to keep it "simpler". A slow recovery from pneumonia has forced me to say no to several things, and I am doing what is very hard for me....asking for help! Even though it's more work to stay home, it does feel most Christmasy to be home. I'm looking forward to the next 48 hours of busy family life and plan to crash on Saturday ! Merry Christmas!! Nancy Joycehttps://www.blogger.com/profile/16992641479164834969noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-20854115949981186772014-12-23T13:30:40.761-08:002014-12-23T13:30:40.761-08:00Happy Holidays Julia. After having my toe nails an...Happy Holidays Julia. After having my toe nails and carpal tunnel surgery, astounding my doctors and myself with super healing scars, I'm pooped. Then my thumb knuckle has been seizing and will need a steroid shot. Can't see the doctor till the 9th of Jan so am wearing a splint. The very worst has been the fight I am having trying to get my Rxs filled. I think my Pharmacist has a mental problem. He shorted me half of my mexaltrexate, said that he had been giving me too much and that he won't give it to me. I am having to send Russell down to demonstrate the dose and prove that I only get two shots out of one vial. He can't understand the instructions on the vial! He was yelling at me as if I had screwed up a shot I have been taking for 4 years. That has wore me out. Then Molina my insurance company has been threatening me with letters asking what accident I was in. Come to find out after a few stray f bombs that they send all of our insurance information for a bunch of lawyers to riff through looking for symptoms that might possibly be related to an accident and they send you a form demanding this information in a threatening way if you ignore such rubbish that I have already filled out through the years for DHS. My moods are swinging around because I had to start using my prednizone. To top it all off, I had to travel to Everett to see a pain doctor to get my zanaflex and hydrocodone. She gave me a script for 2 more grams to my medication. when I sent Sam to pick it up, it was $500.00. Have you tried to call your doctor today? I was leaving messages all over and waiting until the phone line cut me off after ten minutes. I'm glad I have other drugs to rely on in that department but I won't be thrilled if another script isn't waiting for me. Hey, other than that....Shara from Seattlehttps://www.blogger.com/profile/04454085416180469172noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-89307584182292243832014-12-23T08:54:14.790-08:002014-12-23T08:54:14.790-08:00Thanks for asking, Julia. I am doing great right n...Thanks for asking, Julia. I am doing great right now, after 6 months of struggling with various joint pains, eye problems and fatigue coming and going every week. But it has nothing to do with planning or pacing myself (which I am good at these days). December has just suddenly become a "good season" (as my husband says) for me physically, and I am grateful for every moment of it. And pain or no pain, every moment is precious! It's a good day to be alive! Best wishes for you and yours on Christmas and for the new year!stephaniehttps://www.blogger.com/profile/01590844358772463697noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-55133315902443008772014-12-23T07:36:53.389-08:002014-12-23T07:36:53.389-08:00Thanks for writing this. It was one of those &quo...Thanks for writing this. It was one of those "Aha!" moments for me. I had not adrenaline being what is getting me through on occasion. I also agree with Christine above, when one of these episodes happens, I think people think I am faking the Sjogren's. How can I expect others to understand when I am still learning myself. I usually do the pacing thing, but this year my son had surgery Dec. 11th, and it put me behind. I am just doing one day at a time, and taking breaks.mcspireshttps://www.blogger.com/profile/10129916102784468854noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-28206927499256876552014-12-23T03:38:22.076-08:002014-12-23T03:38:22.076-08:00Thanks for writing about this. The adrenaline thin...Thanks for writing about this. The adrenaline thing happens to me frequently with special events. I am grateful for it because it gets me through and I enjoy the event more, but then people think that it means I have control over it all the time, which couldn't be further from the truth. And like you said, then there is the crash..Christine https://www.blogger.com/profile/09892346661528968954noreply@blogger.com