tag:blogger.com,1999:blog-690850457652849477.post6552950246465285082..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: Tell it, SjoggiesJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-690850457652849477.post-33910184092767840422009-01-05T14:18:00.000-08:002009-01-05T14:18:00.000-08:00Hi....I don't have an official diagnosis yet, but ...Hi....<BR/>I don't have an official diagnosis yet, but it's feeling like Sjogren's. I don't struggle much with dryness (oddly) but do have draft and light sensitivity. My primary symptom is FATIGUE. My Rheumatoid factor is positive, but not the other indicators.....(?)ssa/ssb?. Anyway, I'll post more when I'm official....whenever that might be. They're ruling out adrenal insufficiency and MS. I'm glad you've reached a balance in your family....with your health / energy factored in. Please keep writing! --- SpaceyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-52862065646297416872008-12-13T22:16:00.000-08:002008-12-13T22:16:00.000-08:00Hi Laura and Wendy,Greetings to fellow Sjoggies! F...Hi Laura and Wendy,<BR/><BR/>Greetings to fellow Sjoggies! Feel free to jump in and share your thoughts and experiences with autoimmune or any other disease. We all can learn a great deal from each other.Julia Oleinikhttps://www.blogger.com/profile/04857783768340014545noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-64162437083391431712008-12-13T17:30:00.000-08:002008-12-13T17:30:00.000-08:00I was delighted to find your blog, too. (Yea, goo...I was delighted to find your blog, too. (Yea, google alerts!) After 3-plus years of UCTD/incomplete lupus, Sjogren's is now officially added to my list of dubious distinctions. It feels like the best fit yet, though I didn't realize it until reading your insightful blog and others' (Professional Patient, Chloe Conspiracy...). There's something about sharing similarities of personal experience that beats all the symptom lists from those 'dry' (sorry) medical websites. Thanks for 'telling it'!Wendyhttps://www.blogger.com/profile/17483010595618383009noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-10182928680209450492008-12-10T18:02:00.000-08:002008-12-10T18:02:00.000-08:00I've been getting google alerts for Sjogren's for ...I've been getting google alerts for Sjogren's for just over 2 years now, and this repeatedly shows up anytime you mention the disorder... so yes, keep it up. Educating the public, being searchable for this kind of info... it's critical to getting the financial and societal support for what otherwise seems a total mystery or minor complaint (as if us 20/30somethings are complaining of this or that ache just like 80 year olds do)... It's awesome that the society's leaders are staying in touch, too, with people who are discussing the illness plain, simple, and honest...Laurahttps://www.blogger.com/profile/12216899122087521850noreply@blogger.com