tag:blogger.com,1999:blog-690850457652849477.post6226830728398321875..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: How I Learned That Taking Immunosuppressants Makes One Prone To Infections...Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-690850457652849477.post-44015265693371241072018-05-20T10:35:02.549-07:002018-05-20T10:35:02.549-07:00As I sit on the toilet trying to pee, I’m doing re...As I sit on the toilet trying to pee, I’m doing research & lo and behold this entire thread is my current situation!!! Calling my Rheumatologist first thing in the morning! Thank you so much for sharing!! Anonymoushttps://www.blogger.com/profile/11627812933456720654noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-55201309843792073372012-02-24T23:25:50.946-08:002012-02-24T23:25:50.946-08:00Why is your blog so funny to me? (Besides the fact...Why is your blog so funny to me? (Besides the fact that I am sick in the head) Your comment, "painful stimulus in response to unwise behaviors" is me, to a "T". Reading your post, I was nodding, smiling, the whole thing. I got to that part, and literally LOL'd. Not because I enjoy your pain. Because I do the SAME THING OVER AND OVER. And it's funny to me.<br /><br />Because of that, and so many other things, I have something for you. You can find it, here:<br />http://fearlessfibrowarrior.blogspot.com/2012/02/now-pinky-we-take-over-world.html<br /><br />Muah.FFWhttps://www.blogger.com/profile/02739370421071042112noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-88428388289260080752012-02-24T14:27:10.567-08:002012-02-24T14:27:10.567-08:00I am horrified and facinated at the same time.I ca...I am horrified and facinated at the same time.I can't figure out if we are survivors or passengers on a train about to jump the rails.I just bought probiotics.Now I will only use them randomly. Julia, I'm so happy that you opened up the world of Sogrens for me, so many voices talking about this disease but, I'm freaking out right now.Nice picture.Shara from Seattlehttps://www.blogger.com/profile/04454085416180469172noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-56127516687547989122012-02-24T12:30:38.944-08:002012-02-24T12:30:38.944-08:00Annie - Girl. You. Are. Wonderful.
Well, I've...Annie - Girl. You. Are. Wonderful.<br /><br />Well, I've lost a small amount of weight, but mostly my parotids have finally settled down and are less swollen.Julia Oleinikhttps://www.blogger.com/profile/04857783768340014545noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-86086531423704119712012-02-24T12:28:24.680-08:002012-02-24T12:28:24.680-08:00P.S.Julia,
I just noticed your new pic on the sid...P.S.Julia,<br /><br />I just noticed your new pic on the sidebar....really nice! Your face seems thinner, have you lost weight?annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-69369031578888245632012-02-24T12:12:02.793-08:002012-02-24T12:12:02.793-08:00Julia, I found your blog a week ago and I feel as ...Julia, I found your blog a week ago and I feel as if I found myself, my words, my thoughts! I struggle (really struggling right now) with Sjogrens and neuropathy. Lately the pain has become so intense that I feel as if I am constantly jumping out of my skin. I am having problem eating many foods and only wanting to eat bland foods, which usually ends up being pasta and bread. I have been dealing with this for twenty years and you would think by now I would know how to deal with it......BUT I still question why and why. I actually ask my husband the other day if I am really sick or just lazy.....The look on his face was priceless and so encouraging. This is a down time for me( worst than most down times) and all I can do is think of who I use to be and how much I would love to be active again. The toxicity in my body is so high that being around many things makes me sick. My get away use to be art, but that has also be taken from me. I am thankful for finding your blog, to know other people are experiencing the same pain and knowing that I am not crazy feeling the way I do. I also HATE to go to doctor's.... I am tired of them finding just another problem and prescribing just another pill for relief. Thanks for sharing your heart with us!Yvettenoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-75463676736624690232012-02-24T10:59:57.261-08:002012-02-24T10:59:57.261-08:00Thanks, everyone. I"m beginning to feel much ...Thanks, everyone. I"m beginning to feel much better. <br /><br />Leslie - I'm on Gengraf mostly because of my lupus. It's an immunosuppressant most commonly used for organ transplant recipients (in much higher doses, of course). So it probably wouldn't be a drug that your doctor would consider exchanging with Methotrexate. It helps my psoriatic arthritis and the cutaneous lupus stuff.Julia Oleinikhttps://www.blogger.com/profile/04857783768340014545noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-87606224198792628472012-02-24T07:37:13.496-08:002012-02-24T07:37:13.496-08:00Hope you are feeling better. Don't beat yourse...Hope you are feeling better. Don't beat yourself up for not calling the doctor sooner. I am like you in that I cringe at the thought of an extra doctor's visit in addition to the regularly scheduled visits. Good point about probiotics - thanks for all you do.<br /><br />Blessings,<br />DebbieDebbiehttps://www.blogger.com/profile/03408895523100862805noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-29103445270414196122012-02-24T07:22:10.858-08:002012-02-24T07:22:10.858-08:00Julia,
If you're on antibiotics , can you rep...Julia, <br />If you're on antibiotics , can you replace the probiotics with yogurt?<br /><br />I can't say I'm familiar with UTI's,but thanks for the information,so I'll know what to look for if I'm ever affected. Be well.annienoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-3432742567631527322012-02-24T07:13:00.516-08:002012-02-24T07:13:00.516-08:00Wow, Julia! I feel as if you just wrote a blog po...Wow, Julia! I feel as if you just wrote a blog post for me! I had pretty much the same experience this week. I had the UTI symptoms, I sat around a day or two hoping it wasn't, and then I just gave in and called in for the meds.<br /><br />Hope your meds give you some relief, without the other "delightful" side effects!! :o)Blogger Mamahttps://www.blogger.com/profile/05222887642439201203noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-28867438499552996482012-02-24T06:44:23.410-08:002012-02-24T06:44:23.410-08:00Take care Julia, so sorry you have a UTI. Those li...Take care Julia, so sorry you have a UTI. Those little demons were unknown to me until just a couple of years ago, now they come around regularly. Btw, love your bunny plates, option 2 is my choice!Anita Rowe Staffordhttps://www.blogger.com/profile/00774808153237824189noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-82197367761979612962012-02-24T05:22:40.895-08:002012-02-24T05:22:40.895-08:00I have been tempted to try those OTC strips before...I have been tempted to try those OTC strips before to diagnose my own UTI. Now I will skip it.<br /><br />I have had so many of these and I still try to pretend I am not coming down with one.<br /><br />I leave Indiana today... I have been having on/off UTI symptoms for a month... I guess that is poor decision making on my part. My lungs are struggling after my baby sister was here with her sick kids... luckily I have an appointment Monday morning with my family doctor. I just may need it.<br /><br />ToOdLeS.ShEiLahttps://www.blogger.com/profile/12439819553846591903noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-16097232513714492762012-02-24T03:15:53.006-08:002012-02-24T03:15:53.006-08:00Hi Julia--so glad you're doing better--UTI'...Hi Julia--so glad you're doing better--UTI's are the WORST! I've had 2 since being on Methotrexate, plus a few yeast infections...can you tell me the benefit of being on Gengraf over Methotrexate? Because I'm having a hard time on the pill form of Methotrexate, and am probably switching to the injections...have never even heard of Gengraf...wow, what a wonderful resource you are!Leslie at SugarAndSpiceADK.https://www.blogger.com/profile/09311900004547134837noreply@blogger.com