tag:blogger.com,1999:blog-690850457652849477.post6110490149263750343..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: New Biomarkers For Early Diagnosis? Julia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-690850457652849477.post-23088128036456319122012-10-29T05:08:30.540-07:002012-10-29T05:08:30.540-07:00Hello from Kennewick!
I just found your blog whil...Hello from Kennewick!<br /><br />I just found your blog while doing a little surfing here, I'm always looking for medical information for my various diseases. <br /><br />Fifteen years ago I got deathly ill from some kind of flu... and never got better. I stayed tired and weak and pain ridden for months until I finally was told by a doctor I had fibromyalgia. A couple of years later and even sicker I was told I had fibromyalgia plus lupus. I went to all kinds of doctors and tried vitamins, exercise, massage, weight lifting, grape extract (don't ask), special expensive water (really, don't ask) among other things. I finally came to the conclusion there was nothing anyone could do and I was just going to feel bad for the rest of my life. <br /><br />Jump forward to fall of 2010 and I start having the strangest symptoms. Dry mouth. Tongue sticking to the roof of my mouth and having to peel it off in the mornings when I got up. Not being able to chew food without a drink of water. The sides of my face were swollen, my lymph nodes were all swollen in my neck and under my arms. So, now the doctor says I have Sjogren's, which I had never heard of. Then, BAM!, test comes back I have Hashimoto's. Last winter I start noticing my hands are funny colors and I can't hold anything cold. Doctor says I have Raynaud's. Then my hands get nodules on the joints, both hands, then my feet, too. Pain is miserable. No great surprise here, Rheumatoid Arthritis has come to join the great autoimmune party going on inside my body. <br />Throw in some glucose intolerance and some GERD and that completes the picture. I'm wondering if you have any advice or ideas? I don't suppose there is anything I can do to keep further illnesses at bay? Thanks!<br />Sign me TIRED of feeling TIRED. <br /><br />Cynthiane Cynthiane Huertanoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-42953022005716573872012-10-28T11:46:03.265-07:002012-10-28T11:46:03.265-07:00Hi Heidi - since my ANA and SSA/Ro was positive on...Hi Heidi - since my ANA and SSA/Ro was positive on the first testing, these labs haven't been repeated. I believe that some drs. will occasionally reorder these labs for seronegative sjoggies. Julia Oleinikhttps://www.blogger.com/profile/04857783768340014545noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-70026332447764902202012-10-22T11:25:22.564-07:002012-10-22T11:25:22.564-07:00Great information, thanks!Great information, thanks!Christine https://www.blogger.com/profile/09892346661528968954noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-31251796015389274152012-10-21T17:39:48.300-07:002012-10-21T17:39:48.300-07:00Thanks for the info! I wonder when doctors will st...Thanks for the info! I wonder when doctors will start testing for these new Abs? My Ro and La were negative back in May/June- not sure what they are now...Do your docs ever re-test you for these at all? Thanks again!Anonymoushttps://www.blogger.com/profile/16620604486747713220noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-2088680339417354432012-10-20T15:06:21.748-07:002012-10-20T15:06:21.748-07:00This is very good news, so glad the research has f...This is very good news, so glad the research has found something. Back in the early days of my illness I learned that no matter how bad I felt, if there was not a lab test that could generate a result, then I must not be sick. Anita Rowe Staffordhttps://www.blogger.com/profile/00774808153237824189noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-49484278397781652622012-10-20T12:22:32.577-07:002012-10-20T12:22:32.577-07:00Most interesting... progress seems slow but I gues...Most interesting... progress seems slow but I guess eventually someone will benefit from knowing why they feel the way they do sooner than I did.<br /><br />ToOdLeS.ShEiLahttps://www.blogger.com/profile/12439819553846591903noreply@blogger.com