tag:blogger.com,1999:blog-690850457652849477.post4283550689569800731..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: The Moisture Seekers: How to Talk With Your Family about Sjogren'sJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-690850457652849477.post-30122200218317944792014-12-12T07:39:25.209-08:002014-12-12T07:39:25.209-08:00Also - since they never heard of Sjogren's, th...Also - since they never heard of Sjogren's, they are half convinced that I made it up and half convinced it's not so bad!Brigidnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-61824461194591888042014-12-12T07:37:42.485-08:002014-12-12T07:37:42.485-08:00My sisters don't want to hear anything about S...My sisters don't want to hear anything about Sjogren's - one even suggested that if I didn't think about it, I'd feel better! I realized that at least part of this is fear - if they do everything right, maintain healthy weight, exercise, eat the right foods, etc. they will never get sick. Since autoimmune disease hits out of the blue with the caveat that it's partially genetic, my diagnosis scares them.Brigidnoreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-75575977564421406202014-12-11T10:39:33.028-08:002014-12-11T10:39:33.028-08:00Yes I have experienced this but with family. And i...Yes I have experienced this but with family. And it was more about my food allergies that are overwhelming than the Sjogren's. Although during holidays its hard to cook ( I have to cook in order to eat, no take out or out to dinner for me) and my family never offers to help. And they make snarky comments like We don't like your food and we don't want to have you over cause its too hard. I don't ask anyone to accommodate me, I bring my own food. So I don't spend holidays with my birth family, just my kids and husband. Its sad.Christina https://www.blogger.com/profile/14573410980007011505noreply@blogger.com