tag:blogger.com,1999:blog-690850457652849477.post275338079194999553..comments2024-03-19T09:10:47.280-07:00Comments on Reasonably Well: A Mother's LetterJulia Oleinikhttp://www.blogger.com/profile/04857783768340014545noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-690850457652849477.post-56052812209992042682012-03-09T05:08:39.514-08:002012-03-09T05:08:39.514-08:00As part of my job I have student nurses ( third ye...As part of my job I have student nurses ( third year students) shadow me for 6 weeks at a time. My new student arrived Tuesday full of enthusiasm to met all my newborn clients and their families as she plans to finish her nursing degree and then move into midwifery.She was chatty and told me all about her life here as she had relocated to attend school nearby. She said the hardest part had been finding a doctor " who understood her" I pushed a bit further and found that at 21 she had psoratic arthritis, anti-phospholipid syndrome, raynauds and is currently suspecting lupus . Her mother has Sjogrens and RA. I really admired her just pushing forward with her dreams, not looking too far ahead in terms of where her illnesses might restrict her and enjoying all life had to offer.<br />I have 4 children I birthed and I constantly am on the look out for tell tale signs of AI diseases starting in them.I don't think any mother would do differently. But I learned something from this remarkable young lady- that there are no guarantees in life( save death , taxes and tela-marketing calls) and you just have be the best you can be, and don't scare yourself needlessly.<br />I will be thinking good thoughts for this family.cargillwitchhttps://www.blogger.com/profile/06948839908080737239noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-73130976601182518782012-03-08T20:08:25.791-08:002012-03-08T20:08:25.791-08:00As always, Julia, a wise decision (note, I said JU...As always, Julia, a wise decision (note, I said JULIA'S decisions are wise, not BICJ's).<br /><br />By sharing this letter you definitely connected this mama bear with lots of other women who can relate and possibly help her, such as those who have commented before me. I just want to also extend my hand should 'mama' ever need it. I was diagnosed at 15, and also have a strong philosophy about not regretting decisions (such as described in her quote), which I've even blogged about. I hope 'mama' would feel free to contact me if I might ever be helpful to her, her daughter, or in any other way.Jenny Phttps://www.blogger.com/profile/14870488565611786295noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-4580473238682916272012-03-08T11:08:14.703-08:002012-03-08T11:08:14.703-08:00I think as Mother's WE will take on anything.....I think as Mother's WE will take on anything... even auto-immune disease... but when it comes to our kids having the same... it doesn't go over well at all.<br /><br />Thanks for sharing your thoughts and the letter... <br /><br />ToOdLeS.ShEiLahttps://www.blogger.com/profile/12439819553846591903noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-20022335204088153302012-03-08T06:34:39.614-08:002012-03-08T06:34:39.614-08:00Oh my heart breaks for this family. Dealing with a...Oh my heart breaks for this family. Dealing with an autoimmune disease daily is hard enough let alone knowing that your child will go through the same thing. <br /><br />While I know everyone's circumstances are different I just wanted to let the writer know that her daughter can still live a life full of all of her dreams. It may just need to be tweaked a little in some instances. Don't be tempted to let the diagnosis feel like a "dead end" path, instead think of it as a different path in life instead. One that can still give her daughter a life of joy, despite what her health might throw her way.<br /><br />I know this is all easy to say as my daughter is only five and has not been diagnosed with anything. But I hope that what I've said and the many blogs, written by people with chronic illnesses, can be an encouragement. :o)Blogger Mamahttps://www.blogger.com/profile/05222887642439201203noreply@blogger.comtag:blogger.com,1999:blog-690850457652849477.post-70401004086508723572012-03-08T06:15:56.208-08:002012-03-08T06:15:56.208-08:00Reading this sad story definitely puts my health w...Reading this sad story definitely puts my health woes in perspective. As a parent, you always worry about your children, but especially so when it involves illness of any kind. I hope and pray that the positive attitude and good family support will help them get through this difficult time.annienoreply@blogger.com