I like Angry Orchard brand of cider best. But then, that's just me.
Every now and then, mostly after I've enjoyed a cool, fizzy, and refreshing glass of hard apple cider, I let myself daydream about going back to work. If I have had TWO cool, fizzy, and refreshing glasses of hard apple cider, I fantasize about throwing my stethoscope around my neck and slipping into a set of scrubs, then zooming off to my fabulous job in nursing as........well. Right about here my fantasy begins to crumble around the edges. Because even while under the influence of fermented apple juice, I still realize my huge physical limitations with respect to employment. As in It's Just Not Going To Happen, Julia.
Bev and I went shopping today, and I couldn't physically walk through two stores without breaking out into a soaking sweat and my knee screaming. And then we all know what happens to my brain after I've expended too much of my energy reserves, don't we, hm? Yes, we do. Repeat after me:
Tired Equals Stupid.
So I just can't for the life of me figure out how I could possibly be successful in nursing given those limitations. I'll bet that everyone reading this has had some kind of similar thoughts regarding employment in any kind of job.
Which brings us to another topic, which is -- if Sjogren's syndrome does disable you leaving you unable to work, how does one cope with the tidal wave of mixed emotions that arrive with this decision? I continue to battle guilt, anger, frustration, and envy of others' health and energy and fulfilling jobs. Along with huge relief that I don't have to fight my disease to accomplish any kind of success in the workplace.
Are you able to work with Sjogren's? Have you had to modify your job or your home life to make working.....um.....WORK? And if you aren't able to work, how did you come to peace with that reality? I would really love to hear about your thoughts and experiences, so share them in the comment section below.
Christine Molloy, nurse, author and blogger has been experimenting with balancing her life/Sjogren's/work schedule. You can read her most recent post on her blog Thoughts and Ramblings on Life, Love, and Health here:
I've been wanting to do some blog posts about work and chronic illness and I've wanted to write a little about my new job, so I guess this is as good a place to start as any.
As I've mentioned previously, I am in the homestretch of a very challenging and difficult month schedule wise. I am really hoping, that things will settle down a little for me once we go into November. I am definitely not getting the recovery time I physically need right now.
That got me to thinking this morning. I typically work two days a week for a total of fourteen hours. I also sometimes work a third day at my substitute school nurse job although lately that is rare. I am working three days this week. I honestly don't understand how people with chronic illnesses like Sjogren's (or any other illness) work full-time. I say that because all along that has been my ultimate goal: to get back to a full-time nursing job. I started with subbing, now I work part-time, and I was hoping full-time would be doable within the next year or so. Continue reading here.
Keep us all posted, Christine.