Wednesday, April 8, 2015

How old were you when diagnosed with Sjogren's?

Thanks to Dr. Manual Ramos Casals for his tweet found here:  Age at diagnosis in 5037 patients with Sjogren syndrome, a systemic autoimmune disease

I was diagnosed when I was 46. What age were you diagnosed?

14 comments:

Sjogren's Style said...

I was first tested for anti-bodies when I was 28 (positive ANA, anti-RO/SSA, and thyroid peroxidase Ab at that point), but I wasn't officially diagnosed until I was 32 (ANA of >1:640 and SS-A up to >8).

Nicole said...

33, but still unofficial at this point.

Sue said...

I was 45.

A Mom on Spin said...

I first knew my ANA and SSA were positive at age 50 in 2010, but symptoms did not become debilitating until after having the flu in 2014 at age 54.

Amy Junod said...

I was 16 sitting in a pediatrician's office with swollen saliva glands and dry eyes, fatigue. The dr. waited for my Mom to leave the room before he asked me if I was making up my symptoms for attention.
There would be a couple more doctors through the years that suspected Sjogren's but did't follow up with testing.
I was finally diagnosed when I was 45.

AnnaDe said...

Age 66. I'm now 70.

Anonymous said...

I started with symptoms around 60 . Unofficial diagnosis at 61. Now I ' m 63. Still seronegative.

Anonymous said...

Diagnosed at 63 now 67.
Dry eyes started around 59, extreme fatigue around 62, but had dry mouth (but didn't realize it was dry) and cavities and IBS since 30. My blood work always was in the normal range and it wasn't until I refused to believe that it was "stress" and knew I was sick that I was tested for ANA and tested positive.

Anonymous said...

ANA was positive at 37, diagnosed with Sjogren's at 49

LM said...

Looking back, I had symptoms and signs for years prior. Like so many of us, I'd tacked them up to other issues.

After my platelets crashed, a bone marrow biopsy, and rigorous testing, I was diagnosed "officially" on Valentine's Day in 2012. I was 34 years old. Life has never been the same. We live and we learn. :)

Anonymous said...

Age 52 positive SSB, but have had symptoms my whole life.

Jennifer Pettit said...

I was diagnosed at 15, and trace my symptoms back to cyclical infections beginning at age 2 and pain symptoms beginning at age 4.

Julie Harden Sumpter said...

I was 42 when I was diagnosed, but -like so many here - I had been having symptoms for many years.

Blogger Mama said...

I was 26, dealing with a newborn, and trying to figure out why I felt like I was 66. I was partially happy to be diagnosed and have it proven that I was not "imagining things because I was dealing with post partum depression".

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