found in Kelly's blog post, and here.
.......Clearly there needs to be increased awareness with medical professionals about the implications of chronic, invisible, fatigue-inducing diseases have for our lives. But how can we get there? Where can they get these awareness-gaining experiences? How can we get them to gain this awareness? (Notice I don’t say “understand” as I truly don’t think people can “understand” what it’s like without living it, but awareness and empathy are things I think we can impact).
Most of them aren’t listening to individual patients to gain the awareness – I’m absolutely certain I had no impact on Dr. C’s awareness as he shook his head laughing at the silly woman that said she felt fatigued with 8-10 hours per night of sleep plus naps most days. So clearly we can’t rely on their one-on-one experiences with their patients to give them this awareness.Head over to her blog to read it all, and take time to click through to her excellent links.