Are you newly diagnosed? Dr. Nancy Carterton coauthor of "A Body Out Of Balance" writes a blog entitled Sjogren's Forum. She recently answered this question that many of us have asked before:
Q: I have been recently diagnosed with Sjogren's and have been suffering with
severe symptoms of dry mouth and sialadenitis, etc.. I have an appointment at
UCSF sjogren clinic in a few weeks. I don't have a treatment plan and am
struggling with "putting out the fire" of symptoms right now. I need direction and follow up on my submandiblar gland. I do not have an ENT. Any guidance or help is appreciated. Diet and eye drops are not enough.
A: A good place to start is the Sjogren's Syndrome Foundation (SSF ) www.sjogrens.orgMany resources are available including a DVD, Product Resource Booklet, Support Group contact info ... to name a few.
There are a growing number of on-line resources and communities available to explore, such as http://www.reasonablywell-julia.blogspot.com. This is a Blog and Resources provided by an RN who herself has been on the journey.So. Um.....I have to confess that I was surprised and delighted that Dr. Carterton listed Reasonably Well as a resource. But it's only one small item in her list of resources and strategies. Head over there to read it all.
Putting together a team of medical guides depends on what specifically one needs at a given time in the journey of discovery. Continue reading here.