I've only recently discovered a chronic illness blog written by Jane Waterman. It's entitled Blackbird At Night and in it Jane discusses her experiences with Sjogren's syndrome, depression, and other invisible illnesses. Her most recent post is excellent. Check it out:
Beginning With Chronic Illness
I feel like I’ve waited my whole life to begin. In my young life, there were smaller obstacles: a lack of confidence and encouraging remarks, as well as the feeling of being different and sensitive in a noisy, overwhelming world. In my twenties, there came other challenges like physical and mental illness. Sometimes, just being alive felt like a challenge. I’ve been waiting to begin this post for months, as if waiting for the correct alignment of the stars that will make it ‘right’.
The problem is, life never feels quite right – not for a perfectionist in recovery – much less one who never knows on any day whether I’ll be able to get up and shine, or if I’ll be lying in bed feeling unfulfilled and miserable that I’m not beginning what I’m sure I’m meant to begin.
The problem, especially when you’re ill, is finding the time to begin – knowing that within an hour you might have to lie down, and your life work will be interrupted for the millionth time (In fact, I had to lie down and rest in the process of writing this post). So, you get used to not beginning, as you figure that whatever you start will surely be interrupted. So you don’t begin...continue reading here.