Lately, I feel as though I should hire someone to walk in front of me holding a sign that says UNCLEAN! UNCLEAN!.
Anyone want a job?
So the reason I feel as though I should be dumped into a leper colony is obvious:
And you should see my back....ewww.
Dr. Young Guy strongly suspects that my cutaneous lupus is on a rampage due to a reaction to one of my medications, and so the drug manipulation game begins. The first to go was Plaquenil. I dutifully took those pills out from my pill organizer about three weeks ago, and am really beginning to feel the full effect of it's absence: a return of those overall aches and pains and feelings as though I'm running a temperature. Three weeks without Plaquenil has also resulted in an increase in my skin eruptions, not a decrease.
My next doctors appointment is coming up really soon, so it will be interesting to see which medication gets the axe next. I'm mentally steeling myself for a very long summer wearing long sleeved and high necked t shirts. I've stocked up on these. They're cotton, are lightweight, cover a lot of skin, and they're on sale. Too bad they don't have a generous turtleneck that would allow me to cover my blotchy face. I'm continuing to wear sunscreen and my hat. I'm on my third tube of triamcinolone cream.
Even though I understand the importance of this drug elimination process, I'm still cranky as heck. Wouldn't it be great if there was a rash fairy somewhere that could wave her magic wand and make this all go away?
Also, yikes. I've gone to such lengths to make sure these epidurals in my back are effective, but any good that I'm experiencing from them lately is overshadowed by that yucky "every inch of my body hurts" sensation, which I'm attributing to coming off the Plaquenil, but who knows if this is indeed the case.
As if this all wasn't weird enough, it appears my innards are just as cranky as my outsides are. Usually in crankiness - inducing situations, I can always depend on a large therapeutic dose of Krispy Kremes or Ben and Jerry's to vastly improve my attitude.
Funny how that strategy isn't working so well for me lately. After I indulge, it seems that the Ben and Jerry's exits my innards almost as quickly as I put it in. Hm. Also fresh fruit, raw vegetables, coffee in any form whatsoever, carbonated beverages, ibuprofen, naproxin, aspirin, and....well......anything that isn't poached eggs, saltines, tea, and soup.
Wah. Wah wah wah!
Ok. Got that out of my system. Time to brew myself another pot of tea and just get on with things. Which makes me think about a conversation I had with a friend over the weekend. We were chatting and catching up on life events in general. She detected my gloomy attitude and made the mistaken assumption that I was offended by something that she said. I'm so glad that we're close enough to make her feel comfortable with asking me, "Julia. Was it something I said?" I hastily assured her that my crabbiness had nothing whatsoever to do with our conversation; but rather was a reflection of the strange machinations my body has been going through. We hugged, after which I was told in no uncertain terms that she wanted to hear more about my struggles with this disease.
I hadn't thought about anyone actually wanting to hear me belly ache. Or that my efforts to hide my discomfort could be mistaken for anger with a friend. Yikes. I need every friend that I have. I'd better take another look at my communication skills. It appears that they're lacking right now.
So I'm sharing my latest challenges with you as well, my friends. I value you all more than you could possibly know.
See y'all tomorrow.