Wednesday, October 2, 2013

A facebook page for men with Sjogren's syndrome

Thanks to JoAnn for passing along this link to a facebook page for MEN who have Sjogren's syndrome. It is a closed group meaning that before you can follow this page, you need to click the "join group" button up on the top right side of the page.  You can find this facebook page here.

Here's a few excerpts from the page:

 I am your group founder and administrator. My name is Bill Simpson. As I am from the Buffalo NY area and as a diehard Bills fan... my friends all call me "Buffalo Bill"

This is a group dedicated to men who suffer from Sjogren's Syndrome. 

It is open to men only. We are open to all men who suffer from this disease, no matter your race, religion, nationality, sexual inclinations, or political ideals.

.........Everything from diet, cooking and recipes, exercise, medications, music, books or whatever

And if the discussions go towards boxing, football or other sports... well... that's ok too.

We are here to exhort and encourage each other, and to exchange and share information related to this disease.

We shall fellowship as gentlemen.

As we are male Sjogren's Syndrome Sufferers... we are a bit of a rarity. 

We are all affected by Sjogren's and the various symptoms such as dry mouth and mouth sores, dry eyes, arthritis, chronic fatigue, and brain fog.

It affects us in our family lives with our spouses and children. It affects us in the workplace.

Although the majority of Sjs patients are women - the Sjogren's Syndrome Foundation site states a nine to one ratio - there ARE males with this disease as well. I'm glad that Bill has taken the initiative to gather support for gentlemen sjoggies.

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