Tuesday, July 30, 2013

The Moisture Seekers: Sjoggies and Sunshine

Image found on wikipedia, here. 

If only I had read my latest issue of The Moisture Seekers -- the excellent newsletter from the Sjogren's Syndrome Foundation -- I might have avoided some of my latest aches and pains:

12 Tips for Dealing with the Sun and Sjogren's
by Mona Z. Mofid, MD, FAAD

Summer months are most often associated with people enjoying the sun but Sjogren's patients, and those suffering from autoimmune disease in general, need to be cautious about their time in the sun. Ultravoilet (UV) radiation emitted from the sun and other light sources (such as some flourescent lights) can alter immune function and lead to an autoimmune response in the body and in the skin.
     In Sjogren's patients skin rashes and disease flares can result, as well as ocular sensitivity and pain in response to the sun. In Sjogren's, sun sensitivity is associated with the autoantibody SSA/or Ro.......continue reading here.

5 comments:

Julie said...

Ahhhh ohhhh!! This explains so much!! Again, another example of discovering I wasn't crazy, after all, and that there is a true reason behind the effects of being in the sun! Thanks once again, for bringing forth this info!

annie said...

This article has finally given me the push to become a member and receive my own issues of the Moisture Seekers at home.Thanks Julia.

Bubble Girl:Navigating the world in a bubble said...

I read this info a while ago and knew to avoid sun exposure and florescent lights. Its hard to. I dont like being indoors all summer. I bought a couple hats and I wear black long sleeved shirts. And I sit in the sun.
Weird thing is I have been heat sensitive and sun sensitive since 2003. I was diagnosed this year. I think Ive been running around with sjogrens for a while.

Bubble Girl:Navigating the world in a bubble said...

I read this info a while ago and knew to avoid sun exposure and florescent lights. Its hard to. I dont like being indoors all summer. I bought a couple hats and I wear black long sleeved shirts. And I sit in the sun.
Weird thing is I have been heat sensitive and sun sensitive since 2003. I was diagnosed this year. I think Ive been running around with sjogrens for a while.

Kelly said...

The link took me to a sign-in page and I couldn't read the article because I'm not a member of the site. Guess it's time to join...

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