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Very few Sjoggies are fortunate enough to get a Sjogren's Syndrome diagnosis quickly. The average time from symptoms appearing and a diagnosis is seven years.
During those seven years, many of us have heard some really interesting "diagnosis" that were pretty strange. And incredibly wrong.
There's a great thread over at Sjogren's World Forums right now - the initial post asked readers to add their comments regarding this topic:
I thought I'd start a discussion of what was the weirdest off-the-wall, dumbest, whatever diagnosis you got from one of our "learned" professionals.
Head over there to read the entertaining responses. My favorite? A GP telling a patient that her symptoms were due to something that she got from her cat.
Thursday, May 13, 2010
Dopey Diagnosis
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3 comments:
I was one of the lucky ones....I got dx'd in my first year for both Sjogrens and Fibro. Now if only they could figure out a treatment that helps.....ugh.
"The inability of a doctor to correctly diagnose a multisystemic disease is evidence of a deficiency of the doctor rather than a patient's lack of cooperation." This is taken from Melisa Kaplan's anapsid.org site. She is writing on chronic neuroimmune diseases. Very aptly stated...
My first inkling that I would have to rely on myself and could not depend on any doctor, especially my GP, on any kind of help was the day I complained about memory and concentration problems. My GP was alarmed and promptly prescribed prozac and gave me a consultation with a psychiatrist. That was the day I vowed to find out what was wrong with me...I knew it was a physical problem, not a mental one! That was 10+ years ago, when I was diagnosed with chronic fatigue syndrome and fibromyalgia,(by another doctor) and only last year, did my rheumatologist suspect all this was probably caused by sjogren's. It's been a long haul.
I thought I was lucky, I had my symptom in november and got the name of the disease in january, so quite fast. But now nothinh is simple and maybe it was wrong ! So I don't know what I have anymore.
And what the doctor said is not really helpfull, Celiac is "improbable" and I can have an "Atypical" Sjogren.
By the way - totally out of topic, I love lolcat too ^_^
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